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"Putting the patient first in rare disease respiratory trials"

Design, diversity, decentralization

Rare respiratory diseases impose substantial physical and emotional burdens, with few proven therapies and complex clinical needs. Advancing meaningful treatments requires scientifically grounded trial designs that reflect patient realities, reduce participation barriers, and gather high quality evidence across diverse populations. This white paper offers an insightful look at the challenges, patient centered considerations, and scientific approaches shaping rare respiratory research. Read this white paper to better understand the path toward more effective and equitable therapies.

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